Winner
Alastair Kent OBE
Testimonials
A true communicator, Alastair has raised the profile of rare diseases not only in the UK but internationally, keeping his focus on the impact rare diseases have on patients and their family. The huge advances in genetics, often very complex and difficult for patients and families to understand are explained in simple terms, often with a witty illustration. His ability to bring humour into his talks, keeps audiences riveted, when often sad and emotional facts about rare diseases are explained, making compelling listening.
Kay Parkinson, Chief Executive, Cambridge Rare Disease NetworkAlastair always knows how to ‘pitch’ his message to capture the right tone for any meeting. His gentle, yet incisive, advocacy has been so central in driving the rare disease agenda forward in England as well as internationally. His work at Genetic Alliance UK and the fact that NHS England has now formally been tasked to implement a plan for England has been hugely important and inspiring.
Dr Marijcke Veltman, Formerly Operational Director, National Institute for Health Research Rare Diseases Translational Research Collaboration
