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Finalist

Liberate Life: Empowering patients to live a life beyond haemophilia

by Health Unlimited for Sobi (Swedish Orphan Biovitrum AB)

Summary of work

The Liberate Life platform helps patients with haemophilia to live the life they want beyond their condition. The platform provides a range of resources created for and by the haemophilia community that looks at the whole patient journey. Through various formats and tools, it supports and coaches’ patients to manage their haemophilia and achieve the goals they set in life. This is done through video stories of patients sharing everyday challenges and triumphs, and a suite of interactive tools.
The platform is linked to the Liberation Map, an online questionnaire designed to improve the patient - health care provider (HCP) conversations. The questionnaire scores the patient’s behaviours across eight evidence-based aspects of health in haemophilia and creates a personalised map for patients to share with their healthcare team. This can be used to track and adapt changes to care as needed. Patients are also signposted to the appropriate resources on the Liberate Life platform based on the personalised Liberation Map.
Sobi has a strong history in care for rare diseases. Sobi’s ethos and vision has grassroot partnerships for transforming haemophilia care and patients’ lives at its centre.

To date, the program has successfully generated and leveraged data through newly established channels and partnerships with engaged stakeholders. The program has already successfully influenced clinical practice and policy at global, country and clinic levels via novel insights and targeted, patient-focused solutions. Adherence is gaining the attention it has long needed, and real-world outcomes will improve as a result.

Judges’ comments

Although this is a programme that is quite early in its development, the judges felt it deserved recognition for its strong approach and the strong results from the pilot. Liberate Life ticked all the boxes in terms of set-up and the judges look forward to seeing this project develop.